Sunday, March 17, 2013

Leaving for Philadelphia and Lily's heart cath

Tomorrow morning we are getting up early to drive to Philadelphia.  Lily will finally be getting another heart catherization on Tuesday.

It has been 14 months since her last one.





                                                   (pre-hospital dinner -  mac and cheese her fav.)

 We are excited to find out what is going on with her lungs - if her pulmonary hypertension has decreased?






Will she finally be able to get heart surgery?

We are also nervous, she is doing so well, she is happy, growing, developing.  We know she needs surgery, it is what we are praying for, but the though of her going through it is hard!!

We appreciate all your prayers and support, it's a big week for our crazy, wild, princess :)!

1 comment:

rosedel said...

I'm praying for your sweet girl. My goodness she looks wonderful, beautiful, healthy and happy. I hope you have had good news by now.