Lily's oxygen saturations have been in the 70's. We started her on medication for her lungs 4 weeks ago and we have waiting to see if her sats will go into the 80's.
What an amazing birthday present for our girl (she's not smiling because she doesn't like having her sats checked) :)!!!!!!!
She will continue on the medication until April when they will do another cardiac cath and see if her pulmonary hypertension has improved.
