We are getting ready to take Lily to Children's Hospital in Philadelphia on Thursday. The appointment is at 7:45am so we will be driving up tomorrow. It is four hours away from us. They will do an echo, and EKG, and then we will meet with the cardiologist. The main purpose of this visit is to meet and talk with the cardiologist, so that he can examine Lily and she can become his patient. We are excited to move on to the next chapter in Lily's journey and feel very strongly that this is the place she needs to be. With the vast amount of experience and expertise they have at CHOP we feel that we will be able to confidently make decisions on advice that we know we can trust.
Lily is doing amazing, she is continuing to grow and develop. She can now get herself from the ground to sitting and sitting to the ground. She is all over the place and in to everything. Drinking from a straw and eating food. We are continually thankful for every little milestone we see her hit. It is amazing how your perspective on things change when you have a child with special needs. Things that seem so basic, are now such victories. The little things are big. She continues to bring so much joy to our family, her personality continues to come out, she is very goofy, determined, and happy.
Look at her standing with daddy
Beautiful girls
Daddy's girl
4 comments:
We love you Lily :)
She is looking great!! I will be praying for you this Thursday. I will pray specifically that Lily will be able to be settled during her tests, so they will have good results that can be used.
Brenda Barrett from Memphis TN
We love you guys and we'll be praying for your journey there and back and for the visit. I still remember you guys in prayer. May God be ever present in your lives. We know He is and He is all powerful.
She looks soooo good. I can't believe she has chubby cheeks! I hope the news was good at CHOP. I live in Wilmington, DE so you probably drove right through here on your way to Philly. I said prayers for all of you.
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