Quick update on Lily

So it's been 10 days since her cardiac cath and I feel like life has been on fast forward. Thank you to all of you that have offered advice, prayers, words of encouragement, and information on your own experiences with your children with heart conditions. It has all meant a lot, and has contributed to getting us to the place we are at now.


We have been in contact with Children's Hospital in Philadelphia (CHOP). They are ranked number two in the nation for pediatric cardiology, and number one for pulmonology, they are only a four hour drive from us, they have been recommended to us by many of you, and we feel confident if there is another answer then that is where we will find it. They responded within two hours of us contacting them, we have already been very impressed with there professionalism, care and concern. On Thursday we had all of Lily's test results fedexed to them, once they have reviewed them they will set up an appointment.

It looks like they may do another cardiac cath. What we know about the last one is that they had a hard time sedating Lily, so she was awake and fighting through most of it, this could effect the accuracy of the results - we will see. There is a doctor at CHOP that specializes in PH, so we know that whatever we are dealing with we will have the expertise we need.

FYI - Lily is happier than we have ever seen her, laughing and smiling all the time -she makes this journey a lot easier to bare for her momma and dadda - rejoicing and thanking God for all the little miracles we have already seen.