Lily's journey to a stronger heart

And so the journey begins (a little sooner than we expected)........

So many of you have been so sweet offering love, prayer, and support all day I wanted to quickly let you all know what is going on as of right now.

Lily woke up this morning with no fever, but was still refusing to eat. We got to the clinic for our appointment at 10am as soon as they weighed her and saw she had lost weight from yesterday the doctor decided to admit her.

We are on the unit where I work so if we have to be admitted, this makes it a lot better - I work with an amazing group of people.

Since being in the hospital they have drawn blood work and placed an IV - our nurse, Shelly was fantastic she did it all in one stick, and there were a LOT of labs to send. When the results came back some of them were very concerning, so one of the labs was drawn again and the repeat looked much better.

We met with one of the nutritionist and it was decided Lily was at very high risk for refeeding syndrome. This is something that can happen when you increase a malnourished persons feeds to quickly. Because of this they said she needed to feed with an NG tube and nothing by mouth for right now. She is getting feeds continuously and they are increasing the rate very slowly. She will have to get blood work done again in 6 hrs.

Due to the feeding issues we could be here for an extended time.

Lily had a fever, but we didn't give any medicine and it went away by itself.

Lily's oxygen saturation's (this is the level of oxygen in the blood normal is above 92-100%) has been anywhere from 39 - 70. When she cries it really drops low, now I know why she looked so blue at times in China. This is her norm so it is nothing we have to worry about - crazy.

She is still very irritable, but with all that she has been through today who can blame her. I placed her in her crib and she started hitting her head with her hand - a reaction she had stopped doing about a week ago. It is hard to see her regress, but I know it is just temporary and it is her way to deal with stress. Her IV is in the hard that she normally grabs her ear with so this was making her pretty mad, but she soon discovered she could use the other hand and grab the other ear - smart girl :).

Chris is handling things at home - his mom bought dinner over tonight and my mom is feeding us tomorrow. We feel very loved and cared about. It's hard to be away from the boys so soon after returning but they are being amazing and handling things really well - I am so proud of them. Mia came and visited Lily and was very interested in all the tubes and wanted to know what everything was for. She was very loving towards her sister she is such a sweet girl - she melts my heart.

I am doing good - I know we are where we need to be, and as hard as it is seeing Lily go through all of this I know it will ultimately make her stronger. We know God has her in His hands and we are resting in that.

Thank you again for all your words of love and support - it really helped.