This will be short as I am one tied momma, but I know many of you have wanted to know about Lily's appointments.
The pediatricians visit yesterday was fairly uneventful. Her weight was 15lbs 6oz so she has gained weight :). She checked her over, but knowing we were seeing cardiology the next day she deferred any further work up to them.
Today we saw the cardiologist. They did an echo of her heart, which is like an ultrasound. It showed that she did have tricuspid atresia, VSD, and ASD (which we didn't know about). He was positive about her heart and said it was favorable for surgery. Before they can do surgery they want to do a cardiac cath, she will have to be sedated for this, they will be checking for pulmonary hypertension. This will probably be done in the next 3 weeks and her surgery will hopefully be done in September. The focus right now is to try and get her as strong as possible and to gain weight - easier said than done. Over all it was a positive appointment - the reality and seriousness of her condition was certainly hard to hear, not that it was anything new it was just different when we were dealing with all this in theory and now it is all very real. We are very much attached to this sweet girl and to have to see her go through all of this is heart wrenching.
To be honest things have been tough since we got home. Lily is so not herself. She is constantly irritable, her cough is worse, and she started with a fever last night, that she has continued to have all day today. She has refused to drink from her bottle all day so this evening I have been feeding her with a syringe to get fluids in her and avoid an ER visit tonight.
Tomorrow we have an appointment with the international adoption clinic, where they are going to do blood work, a chest x-ray, and more of a head to toe evaluation, and we will also see the nutritionist to see how we can get more calories in her. I am very excited for this appointment as there are so many things going on with Lliy it will be good to have someone looking at everything. If she is still unwell tomorrow there is a chance she may have to be admitted to the hospital.
Right now we are just taking one day at a time.
Thank you all for your encouraging words and prayers,
3 comments:
I'm happy to see that you are finally able to get medical help for your daughter. She is in my prayers!
I'm saying prayers for your little one. I'm so glad she stayed healthy long enough to get home.
Praying for Lily that her sickness goes away and she get's back to her sweet little self again. Hopefully it is nothing serious maybe just a travel bug or something. Please jeep us updated and let us know more specific prayers requests.
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Jenn
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