I apologize for taking so long to update on Lily - life is moving fast in the Yeatts family these days as we prepare for traveling to China for Cole and
Lily's OPEN HEART SURGERY
We have a date
AUGUST 22nd 2013
It has been decided that due to the fact that Lily's lungs are looking so much better, and her pulmonary hypertension has decreased so much, they are going to do one BIG surgery, the Fontan and skip the Glenn. This is great news as it means only one open heart surgery for Lily, but it also means the surgery will be more involved and recovery will be longer.
We have to be in Philadelphia at CHOP on 8/21 for her preop visit. We are not sure how long we will be there, but are preparing for a month. It could be shorter or longer, it all depends on how she does.
This was not our original plan. We had wanted her to have surgery, in May or June, before traveling to China to bring Cole home, but that didn't happen. It will be hard to return from China with Cole and have to leave so soon to take Lily. This is why we need to travel to China as SOON as possible. WE are hoping to leave sometime around the 20th of July, which would give us 2 weeks home before we have to be at CHOP.
Please pray that we can go to China soon - we still need our TA (travel approval)
We are so grateful to God that Lily is able to get surgery, this is something that we were told may NEVER happen. She is such a joy to us, and has come so far. It is scary putting our precious girls life into the hands of the surgeon, but we know that the great physician (our Heavenly Father)will be right there with her. Her diagnosis of Tricuspid Atresia, ASD, VSD, and half a heart, meant she is palliative, she can't be fixed - with this surgery she will be able to live well into adulthood, with out maybe only 5 more years (or less). The surgery is risky, but we know God has opened a door we were told was closed to Lily, so we are walking through it trusting Him.
This is an emotional time, with the surgery and bringing Cole home, please continue to pray for us. We need to get Cole home now.
This is an emotional time, with the surgery and bringing Cole home, please continue to pray for us. We need to get Cole home now.
2 comments:
Hi Rachel, I stopped by the AW yahoo group and saw your post! I had no idea you all had gone back to China for your son! He is precious!!! I just read all of the "Cole" posts all the way back.
I am putting Lily's surgery date on iCal right now. I think you know but our older daughter didn't have the glenn (or anything else) and went straight to the fontan. We were told a month too, but she came home in 8 days and has never looked back. She has many defects including TGA and single ventricle.
Then our baby girl had the fontan (post-glenn though) and came home in 6 days. She has basically half of a heart and it is all backward and upside down.
I don't even understand how these surgeons do what they do, but I am thankful God gifts them with the knowledge and ability to work on these precious hearts.
I am praying for God to do exceedingly MORE than you all are asking and imagining. I know He already has by getting Lily to the point where surgery IS POSSIBLE.
Praying!
I am keeping Lily in my prayers.
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