Lily will be heading to Children's Hospital in Philadelphia next
Tuesday for her
Cardiac Catherization and Cardiac MRI
which are scheduled for
January 23rd
Since her surgery was cancelled last spring, we have added one additional medication to treat her pulmonary hypertension. She has been doing amazingly well. Growing, developing, and bringing much joy to our family. The purpose of this cath is to determine if her hypertension has further decreased to a level that the surgeons feel comfortable moving forward with her first cardiac surgery the Glenn.
Please pray for Lily next week as she hates going to the hospital, also for safety during the procedure, and for the results.
We will up there for 3 days, and will update on facebook.
On January 5th Lily turned 5
It is hard to believe - she has changed so much in 2 1/2 years. She is keeping us on our toes, into everything. Her favorite occupation, turning on taps and flooding the bathroom!! This in itself is amazing, considering she spent the first year with us terrified of water!!
We love you beautiful girl
Happy Birthday
2 comments:
WOW - she has GROWN
Will pray this cath is picture perfect. Pun intended!
Precious Rach ... I am trusting with you that everything goes well! I know that our Jesus has such a mighty and protective hand over her heart and life. Trusting and believing with you!!!
BIGGEST hugs.
Janine
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