She is doing so well - growing, WALKING, happy, enjoying life
We were at Chop last Friday for a pre-cath visit, lots of tests - she was not happy!! The best part of the day was meeting another very special heart girl, Teresa, and her mom, Ann. You can read about Teresa here, on her momma's blog. Teresa has severe cardiac defects and is in a similar situation to Lily in that she has pulmonary hypertension, and therefore has been unable to have the life saving surgery she needs. We met a few weeks ago online when I was introduced to Ann's blog by my friend Jen, after a few emails back and forth we realized we were both going to be at CHOP on Jan 13th. Teresa is an amazing little girl, full of life, so sweet and chatty - her mom is also pretty amazing, she has 9 children, 5 of which were adopted from China, all with medical needs - go check out her blog and read about the miracle they are seeing unfold in little Teresa's body.
We are going into Monday with anticipation. We are anxious to know what is going on inside of Lily - from the outside she looks amazing - gaining weight, pink (except in the mornings when her hands and feet can look pretty blue), full of energy. It's what's going on in her heart and lungs that we want to know - and more to the point has there been a change in her PULMONARY HYPERTENSION after a year on medication????
We have peace in our hearts - and whatever the news is, we know God is in control - as someone recently reminded me of - He loves Lily more than we do.
I will update from CHOP as soon as I can, thank you for all your continued love and prayers for Lily and us.
Here is a video of lily expolring CHOP last Friday - enjoy (it still amazes me to see her walking)
2 comments:
Thank you for that video. Such a treat to see her walking around and looking at everything in that big open space. She is in my prayers and I'm asking God for good news.
Was just wondering how things are going. Praying.
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