Friday September 24th we finally heard back from the cardiologist. They had a big meeting that day with all the cardiologists and the cardiac surgeon to discuss Lily.
A lot of what he said to us is very medically confusing so I won't even try to attempt to repeat it here.
The bottom line is they have a LOT of concerns about moving forward with surgery at this point. The damage to her lungs from living with her heart condition could be life threatening if they proceed.
If they did nothing history shows she could live 15-30 years - the last 10 of which she would become sicker and sicker - is this something we are willing to accept - NO!!!
So what now - well there are options, medication or possibly another surgery to improve the issues with her lungs.
At this point nothing is ruled out not even the original surgery - our cardiologist feels if there is something we can do to give her a good shot at a longer, and better quality of life then we need to take it - we are in agreement so now he is sending her information to trusted colleagues at UVA and DC Childrens for 2nd oppinions.
So now we wait again.
Is this what we were hoping to hear? NO way
Did we ever think when we adopted her that she could be inoperable? NO way
Would we change anything? NO way
We love her, she is a Yeatts, no longer an orphan - we will fight for her, love her, and do everything in our power to see her strong and healthy.
As Christians we are trusting in God. We know He lead us to her. We know He has the power to heal her body. We know we are on this journey for a reason.
We are not in a place of dis pare, but a place of hope and faith. Of coarse this was hard to hear, yes we shed some tears, yes we asked God why.
We didn't have long to absorb the news or dwell on it, as almost immediately our house was over run with 8 boys, here to celebrate Ethan's 10th birthday - so it was off out to laser tag, and then a sleepover - this was actually just what we needed - lily was so funny and playful, enjoying every moment of it - and so we were gently reminded that daily we get to see little miracles in lily happening right before our eyes.
Where once she could not even tolerate sitting on our laps she now loves to sit in her boomba chair, holding her head up without it bobbing around.
Where once she only made one sound she now babbles, smiles and laughs.
Where once she was frail and only weighed 14.5 lbs she is now strong, and weighing 19lbs.
So now we keep on doing what we have been doing - living our life daily, seeing Lily growing and getting stronger. Enjoying every moment we have, not loosing the moments by being preoccupied waiting for doctors calls, and wondering about the what ifs, instead treasuring what we have been given - for she is a gift of immeasurable value.